Support Groups and Forums

Support Groups and Forums

 

Websites

IMP List of Facebook Groups

MyGene2

PatientsLikeMe

RareConnect

The Mighty

TalkMD - Muscular Dystrophy Online

Inspire

 

Facebook – UK

As there are lots of facebook groups, we have included the mito-specific ones as opposed to more general groups which cover mito. Group descriptions are as described by themselves.

LHON Society

Kearns Sayre

Leigh Network

MERFF

MELAS Rare Disease

Lily Foundation

Mito Adult Support

Mito Matters UK

 

Facebook – Worldwide (English Speaking):

Adult Mitochondrial Disease

Australian Mitochondrial Disease Foundation

Canadian Mito

CPEO-KSS

Lebers Hereditary Optic Neuropathy Plus

Leber's Hereditary Optic Neuropathy (LHON) (BLIND) on Facebook

LHON - List of Facebook Groups Worldwide

MELAS Support

Mito Cafe

Mito Families

Mito Friends

Mito Moms Support

Mito Singles Support & Inspiration

MitoAction

Mitochondrial Disease Awareness & Education

Mitochondrial Disease

Mitochondrial & Metabolic Disease Nutrition Discussion

PDCD Parents & Friends

Pyruvate Dehydrogenase Complex Deficiency (PDCD) Parents and Guardians

United Mitochondrial Disease Foundation (UMDF)